dailylifewithchronicillness:

honestly, one of the ultimate worst spoonie problems is being freezing cold but being unable to take a hot shower because you’d faint or die or something (I wouldn’t know anymore because all my stupid showers are depressingly lukewarm for that exact reason)

THIS. THIS THIS THIS THIS THIS. T.H.I.S

chronicallybadass:

coralreefer420:

Soaking in a medicated bath. It doesn’t get me high, but it does soothe my body and deep into my system.

Maya, the creator and mastermind behind OM Edibles was on Stoney Sunday recently to explain the benefits of medicated baths, much more thoroughly than I could! StoneySunday.com (http://stoneysunday.com/2016/01/10/live-with-om-edibles-topicals-medicated-baths-edibles-more-stoney-sunday-270/) has the episode, but follow OM Edibles on Instagram for what’s new with her!

duxley:

faeriebae:

spaceexp:

A shot of just a tiny bit of the Andromeda Galaxy, from the sharpest ever view taken by the Hubble Space Telescope

via reddit

This makes me feel at peace.

EVERYONE JUST TAKE A STEP BACK AND LOOK AT THIS

This almost looks like sand sparkling in the sun after there’s still a slight coating of ocean covering it after a wave. Which is pretty amazing too…

fabwithfibro:

hospitalmetaphors:

Chronic illness has put me in a different place in life than everybody else my age and I need to remind myself not to be ashamed of that. 

This!

Originally posted by meanwhileongiphy

I’m 30, I’ve had a cane for 3 years now. I am still ashamed of my cane and hate to use it. Just like I hate my wrist splints too. I make my life harder because I hate the way people look at me when I use my aides. (Cane, splints or slings) I feel so judged all the time.

aguacatera:

bedboundspoonies:

There has been a Class II recall of Lyrica/pregabalin 50 mg and 75 mg capsules, there are details here: http://www.goodrx.com/blog/recall-lyrica-for-nerve-pain-and-seizures/

Mod S

For my chronically ill friends who use pregabalin.

So, today I had an in home medical visit that my health insurance company does annually. I knew the visit would be a quick over view of my health. I was anxious. At this time last year I was taking about a dozen prescription drugs to treat my anxiety, depression, PTSD, bipolar disorder, sleep disorder and fibromyalgia. Four pills at breakfast, two to three for lunch, three at dinner and two to three at bed time… Give or take. Pain pills, anti anxiety pills, mood stabilizers and antidepressants.
I took anything and everything the doctors told me to. I also took supplements, like vitamins and stuff. My hair fell out in clumps, my nails didn’t grow and were weak, I had zero appetite. I was always exhausted and I cried over everything. I couldn’t sleep, then I’d sleep for days. Food tastes like garbage, always. My body ached nonstop no matter what I did. I had no energy. I didn’t want to see people, but I cried that I was alone or panicked when I was in public. I was miserable. I wasn’t me. I did everything I was supposed to and I still wasn’t happy or healthy or close to either. I was a zombie. I was useless. My house was always a mess. I treated my friends and family like crap sometimes. I just wasn’t a good me.
These things had been bothering me for a long time and I had gone back and forth with my options for a long time (a couple years at that point) and after someone one very special and important to me showed me how dangerous those types of drugs can be after their personal abuse led them to seek other drugs and down a path of addiction, I decided to make a change. I started to set aside some money. I made probably one hundred phone calls to doctors and specialists. I read articles on line. I reviewed the state laws. I detoxed off the medications. I thought the pain meds would be the hardest to kick, but it was my anti anxiety medication that was the hardest. I stopped taking them in April and was still wanting them in July. I haven’t taken anything more than Advil since my sister went to rehab in April. No antidepressants or anti anxiety pills, no mood stabilizers or sleeping pills… Nothing but Advil… And weed.
I got my medical marijuana card.
It was the best thing I’d ever done for myself next to my divorce. I used to live in the emergency room. This time of year I’d have at least two or three visits already. In 2015 I think I okay had about three visits from June to December and one was as a result of a car accident. So that being said, I think anyone would agree that that’s pretty remarkable. The proof is really here, scroll through my various tumblrs or even my Facebook or Instagram. I used to bitch daily about how sick and miserable I was, and I really don’t complain like that anymore. I don’t feel as sick or as miserable. I can, on occasion take a day trip, if I can smoke or vape I can do it more often than not. My son doesn’t know what’s different, but he knows mommy is better. People around me who know me in one way or another, have been reaching out to me, telling me that they don’t know what it is, but something is different about me in a good way.
I feel so good. I’m not healed. I’m not running any marathons or getting a full time job or anything like that, but my life is better.
I am happy.
I am healthier than I was.
I am healing.
I am hopefully.
Marijuna has saved my life.
This is something that has just occurred to me today.
At my home visit I was asked what medications I took. I said none. He then explained what medication was to me. He jabbed at me a bit, and honestly I don’t think it was intentional. He made remarks about my age, he works for disability so he deals with people in their seventies and on usually, so as mad as I wanted to be, I wasn’t. I told him about where I was this time last year. I told him about how sick I was and all the pills I took. Then I told him I went a different way and that I use more natural medicine to treat my health conditions. Then he asked the next question which was, what are my health conditions. So I told him my physical and mental health conditions. (Fibromyalgia, arthritis, carpal tunnel syndrome, anxiety, depression, PTSD, bipolar disorder and sleep disorder) He couldn’t believe that I had all those issues and wasn’t taking anything and he asked what I was doing that was working to the point I didn’t need anything from the doctors. I finally opened up to him and that led to an hour long talk about the medical marvel that is Marijuna. Then at the end, he looks at me and says he thinks he better take that off of my chart because he felt that was safer. He said he felt like if he left it on file that it might have some adverse effects of some kind. He thought it was great that I was treating my health that way and we got into the topic quite a bit. He said he hopes to one day be able to prescribe that to patients one day. He couldn’t believe how expensive it is though to obtain it legally from a dispensary here in New Jersey. He’s purchased it in Colorado recreationally, and said their prices are so low and thought that $536 an ounce was insane. (Though to be honest it totally is.)

flares-of-fibro:

Shout out to anyone confined to their bed right now,
you aren’t pathetic or lazy or anything else you’re thinking.

I needed this right now. I’ve been getting up here and there because I live alone so if I don’t get up and do certain things, they won’t get done, but I feel so useless like why can’t I do normal things like watch tv on the couch in the living room?!?

There’s a pain in my foot, it’s not a place that I can rub or massage or anything. It’s there when I stand, when I walk or when I sit. There’s a pain in my wrists that runs up the sides of my hands right straight through to the top of my pinky. There’s this ache in my back, no amount of heat or ice can ease it. My legs feel weak. Unsteady at best. My knees and elbows are creaky like only hinges on a door. My right hip likes to pop out when I move, sometimes with such force others can see it or that I fall to the ground. Today I feel so much pain when I move that all I want to do is lay in bed and close my eyes. Days like today make me feel like I can’t win because no matter what I do, I’m going to be sore and tired. Days like today make me feel like such a shitty human.

• anyone ever: It's getting hot in here.
• my brain: ......so take off all your clothes ;) ;) ;) ;) ;)
• me: wtf why??? still? what year is it??????

thebusinesscrohnie:

Your opinion on my experience as a chronically ill person when you are not chronically ill, is about as valid as my opinion on your pain if I hit you in the face. BECAUSE I’M NOT THE ONE EXPERIENCING IT.

If you have never experienced it, you will NEVER understand it.

So shut up about any kind of silver lining, cause if there is one, you’re the last one who could point it out.

Your opinion is invalid.

I feel like I’ve been absent lately. I mean, I’m here. I get on and off all day to check things out, but I haven’t posted much lately. That’s kinda been my life lately too. I’m here, but I’m not “here”. I just need a pause for a while. I am so extremely tired. #excuseme #absence #presents #cold #hibernate #winter #newjersey #notmyself

This is what I want to do every morning when I get up the last couple weeks!! I’m ready to hibernate!! #coldasfuck #brrr #winter #newjersey #cold #hibernate

My night so far. It could be way worse. #spoonie #parksandrec #bed #chillin #sundayfunday #keansburg #newjersey #tired